Health-RI exchange offers insights into shaping a national BioCommons

21 November 2024

In October 2024, ELIXIR-UK and its conceived initiative – BioFAIR –  engaged in a knowledge exchange with the Netherlands’ Health-RI (ELIXIR-NL) to refine governance and operational strategies for national research data infrastructures.

The meeting brought together Gerry Reilly, Interim Director of BioFAIR, with Mijke Jetten, FAIR Data Lead, and Janet Vos, Coordinator of European Research Infrastructures at Health-RI/ELIXIR-NL, alongside Munazah Andrabi, Community and Data Manager at the University of Manchester (ELIXIR-UK), to discuss lessons learned and explore collaborative opportunities.

Health-RI, the Netherlands’ established data infrastructure for health and life sciences, provides a comprehensive “National Data Portal” with a suite of services that support data-driven research across disciplines. As BioFAIR begins to establish a similar infrastructure for UK researchers, Health-RI’s insights on governance and model development proved valuable, highlighting shared challenges and effective strategies.

Key collaboration areas emerged from the discussions, including metadata model development, cataloguing, and best practice sharing. Health-RI’s established workflows in these domains offer BioFAIR a potential foundation for adapting proven methods and tools. The two initiatives also explored joint training opportunities, envisioning shared training materials and resources to support FAIR data compliance across borders.

Through this exchange, BioFAIR gains access to Health-RI’s tested approaches to establishing a national BioCommons, strengthening the UK’s capability to build a robust data infrastructure tailored to the needs of its life science research community.

Notes to editors

About ELIXIR-UK

ELIXIR-UK is part of the European ELIXIR infrastructure, which supports life science research and its translation to medicine, the environment, and society. By integrating national bioinformatics resources, ELIXIR-UK aims to provide a sustainable infrastructure for biological information, ensuring that data is effectively managed, analysed and shared across the scientific community.

For further details, reach out to us at [email protected]

About BioFAIR

BioFAIR is a BioCommons infrastructure for UK life science researchers funded by UKRI with a £34 million budget over 5 years.

BioFAIR will deliver a step change in ‘Findable, Accessible, Interoperable and Re-usable’ (FAIR) research data management, providing end-to-end FAIR research data management and analysis capabilities along with the necessary support and training for UK researchers working in the life sciences.

About Health-Ri

Health-Ri is an organisation in the Netherlands dedicated to improving the reuse of health data for policy, research, and innovation to achieve a learning healthcare system. Their mission is to improve health for citizens and patients​ by​ reusing health & life sciences data​ with​ an integrated data infrastructure​ to​ enable data-driven research, innovation and policy. Health-RI is host of the Dutch Node of ELIXIR,  and coordinator of the Thematic Digital Competence Center for Life Science and Health.