From data silos to a federated cancer data network
Cancer research depends on access to high-quality data, yet much of this data remains fragmented across institutions and systems.
In this UK Human Data and Tech Club call, colleagues from ELIXIR Ireland at the University of Limerick will share their work to connect and harmonise clinical and ‘omics cancer data for research across the island of Ireland.
The talk will provide an overview of Ireland’s federated cancer data programme, including:
- The development of national cancer data nodes
- Alignment with the European Health Data Space (EHDS)
- Participation in international standards initiatives such as OHDSI OMOP, HL7’s European common cancer model ontology, Digione MEDOC and the GDI minimal data model
Speaker
Aedín C. Culhane
Full Professor, Cancer Genomics, SALI Chair
Faculty of Education & Health Sciences
University of Limerick, ELIXIR Ireland
What to expect
- An introduction to Ireland’s approach to federated cancer data infrastructure
- Insights into harmonising clinical and omics cancer data.
- An overview of how European data standards are being implemented in practice
Who should attend
- Researchers working with clinical or cancer data
- Data stewards and research data managers
- Infrastructure providers and technical leads
- Anyone interested in federated data, interoperability and data standards
How to join
This event will be held virtually. Register to join the ELIXIR-UK Human Data & Tech Club to receive the meeting link and further details. If you don’t wish to attend the community calls in the future, you can unsubscribe at any time.
